On some days like today those little girls are so present. Today they were at every turn.
In the questions of my three-year-old, continually trying to make sense of her role as big sister to Ellis and little sister to something so difficult to understand. "Were you sad when Ellery and Olivia died, mama? And then you were happy that two more sisters came? Why can't I send them something? Can we all die together when it's time, you and Ma and Ellis and me?"
In the precious cuddliness of my youngest, such a strong reminder of what we missed before but at the same time so oddly familiar, as though those sisters had come home after all and that all the delicious routines of having a baby had been happening here in repeated cycles for the last four years. But routine is never routine because of those first girls. Our lives are filled with much-appreciated delight in the smallest of moments.
There was an email from a friend out-of-touch, reaching out on the fifth anniversary of her babies' birth and death. Because as the years go by, more people forget or remain silent on the important days. More people are in your life who never knew the days to begin with. And the other mamas who have lost children are the keepers of the flame, even if we have to remind each other that yes, I did need you to say my baby's name today. Yes, I did ache for someone else to remember. When Ellery and Olivia died one of the most sincere and touching gifts given to me was a letter from a teaching colleague. In the letter she told me the story of being present at the birth and death of a friend's baby boy. She admitted to me that in all the many years since that day, she had never mentioned him to her friend again, for fear of upsetting her. And after Ellery and Olivia died and I sent out a sort of plea to my coworkers to stop being silent, she called her friend, and she asked about that little boy, called him by name. It still makes me weep, thinking about that phone call. I still feel humbled that my daughters' lives made that moment happen, and I feel so proud of my coworker for picking up the phone.
I read a favorite blog of mine today, a crafty one, filled with the ambitious and righteous plans of an excited first-time mama. Nothing else can seem as maddening and naive to a mama who has lost babies or been through infertility as the certainty with which a first-time mother who got pregnant easily talks about the future. I practically had to tie my fingers together to stop myself from commenting. You mean if your baby comes home, not when. Make all the plans you like, but sometimes babies die. You might change your mind about an epidural if you're trying to conserve your energy for the only ten minutes you'll ever have with your child. Your birth plan might not seem so important then. You of course cannot really say these things to a first-time mother without looking like a monster. You almost can't think them without feeling like one. But there it is. That's one of the things that happens to you--you have to learn to bite your tongue around the optimistic mamas-to-be.
There was a phone call from a newer friend today, too, so hopefully, nervously and unexpectedly pregnant after multiple losses. Some people say that all babies are equally precious, but it isn't true. There are a lot of beautiful birds in the world, colorful and tuneful and fantastic to watch. Miracles all, yes, certainly. But a phoenix? How often do you witness not just a miracle, but a miracle born of ashes rising in flight? Babies after loss are spectacular in that way, and I am so hoping this summer brings another to this very deserving mama.
There was the book I just finished. Tore through like water after a desert trek, in fact. I longed for this book four years ago. I would have handed it out to everyone I knew. I still might. If you want to understand a little of what it is like to survive the death of your baby, or to be asked "is this your first?" around every turn when it isn't your first, or if you want to know what to do for someone experiencing the loss of a child, here is where you should turn. It is devoid of the talk of angels and footprints in the sand and all the other things that, for me, were more isolating than comforting. It is beautiful and heartbreaking and full of truth. I do not know how she managed to describe things that are so difficult to describe, nor to tell something so painful both compellingly and artfully, but she did. You can read an excerpt here.
Through that book, this website. Which for me was a bit like being at a party where you know no one and feel completely out of your element, then opening a door to find all of your closest friends gathered around a fireplace with a mug of hot tea and a cupcake waiting for you. Oh, how I wish you had been there during the first few agonizing hours of this party, but I am so happy to know you are there now.
And so my first, fleeting daughters, although your little sisters fill so many days with their glorious clamor, today was yours. Today I write as your mama, wholly and thankfully for all you have brought to me. I am still learning from you. And I miss you.

10 comments:
I don't want to leave a long comment and I don't want to cheapen this beautiful post by "sharing" a story, but I must say I feel a tiny shred of your pain. My husband and I were trying to conceive for a few years before we got married and nothing ever seemed to happen aside from a few "late" cycles that were probably, in retrospect, early losses. When we finally did succeed, I lost "her" just a few short weeks later. Then we lost another about a year later. Mine were so early, I can't liken them to the magnitude of your loss, but I still ache for my babies every day.
When I finally successfully conceived and carried my first son, I rejoiced in every aspect of my pregnancy and cherished every moment of our new life, truly knowing what a gift I had been given. And I was lucky enough to have another son last summer, again with no complications. He is a "difficult" baby, and probably would be causing me a lot of stress and heartache and "why me?" had it not been for those painful learning moments along the way.
That is much longer than I wanted it to be. We are out here, listening and sympathizing and enjoying everything you post because it connects us all to people who understand.
What a beautiful post. I applaud you for teaching those of us who don't know what it is to lose their own.
I would never try to say that I understand what you have and are going through. And I hope this doesn't aggravate or iritate you, but I feel a certain connection to all who have suffered profound loss. I lost my brother suddenly 2 years ago, when my daughter was 10 months old. She now has so many questions that I just can't always answer. The world has continued on and I'm still trying to figure out how to exsist in a world where he doesn't. People are often afraid to mention his name when I want little more than to cherish every thought of him. Half a year after his death I moved to a new state where I knew no one and obviously no one knew him. And on and on... So, I can relate at least in part to what you have expressed here.
And so I thank you. And I feel for you.
You are an amazingly strong mama. And those little twin girls were so fortunate to have you and Amy in their lives. Though I could never understand such a tremendous loss, my heart goes out to you. I feel so blessed to know you.
What can I say? It was your twins and my twins that connected us from the beginning. But we were yet to know how deep that connection would take us. How rare was it to meet someone from the same town, that had struggled for the same amount of time with the hell we knew called infertility. And to be due with twins on the same day? And then, in mid June, I found out that my outcome would end with a bittersweetness no one could comprehend. One would survive (hopefully) and one would not (No doubts). I was so scared to see or talk to you. You would be my reminder of the upcoming loss. I feel so guilty for those thoughts. Because, then the email came on on the first of July. You were in the hospital. And all I could think of was to come meet and be with you. I felt a terror deep down. But also the shame, of thinking I almost walked away from the most amazing person I had ever met. But I still felt a little hope, maybe the doctors could keep them in, long enough to give them a fighting chance. I was already facing the upcoming loss, wouldn't that be enough? Did you have to face it too? I was suddenly willing to take all the pain from our journeys, hoping you would never have to feel it too. I remember calling the hospital on July 10, 2004. The nurse said she couldn't put my call through, you requested privacy. I knew. I felt it deep. I sat in my chair and felt the overwhelming saddness and cried. For your too brief meeting of your miracles.
Then something amazing happened, you still wanted to be my friend. And I felt the shame all over again. You are an amazing person, words are not nearly enough to explain that. You came to the hopital when it was my turn. That must of been a agonizing moment for you. The place your miracles lived their too short lives. It must of been like living your nightmare all over again, but you did it for me. Because I needed some of the strength you carried.
I got to keep one of my miracles. And I feel the saddness of Ellery, Olivia and Grace when I look at the amazing person Ethan is becoming. There should be 4. There is only 1.
I don't think I ever told you all these thoughts, but after reading this post, I know it is time.
Thank you, for standing by my side with love.
I am sorry, for your tremendous loss.
I am grateful for Ellery and Olivia, for bringing you into my life.
I am thankful, that those two amazing angels have mommas that love them so unconditionally. And grateful, Clara and Ellis get to grow up in the love, patience and understanding you and Amy have for them.
But most of all, I am amazed. At you and your strength. What you have been through, no one should have to endure. Especially someone so filled with love, hope and compassion. There is not a day that goes by I am not grateful you came into my life. You helped me stay strong. You helped me to keep going forward and not get lost in the pain and loss. You helped me.
Thank you for your honesty and bravery in sharing your story. I was deeply moved by your words and comments to your story. I can't even imagine your lost. It is amazing how much you have learned from the short life of your precious twins. I wish I knew you better. Your younger daughters are so lucky for having you as their mama. Thank you. Miri
Well. Your post brought me to tears, then reading the other comments just brought on more. Thank you for saying so much, words come to you in a way they don't for me. I have shared some of your thoughts before, and others are new but strangely comforting in a way that maybe only the mama of a dead baby can identify with. So glad we met at BE, and that we found each other again. Thinking of you, E&O, C&E, Amy today. Thank you for always speaking of Miles by name.
There isn't a day that goes by without me thinking of you and Amy, and the types of Mamas you both are. I know you have mentioned that Ellery and Olivia helped shape the mothers that you have become, and for that reason alone, we would appreciate them. You are the epitome of grace.
i just discovered your blog from your nomination on gitw. we lost our baby boy silas over 5 months ago from complications during delivery. this post was beautiful. reading the book and discovering gitw were both 2 really important pieces in this new world of babyloss. i hate being in this club, but now that i'm here, i'm glad to have all these incredible people to share it with.
I found you by way of glow in the woods, and am so glad I did - what an amazing post. Thank you so much for sharing these words.
I just had a distant friend lose their baby this weekend. I ordered this book, and I am hoping that some time down the road a few montsh from now it might be appropriate to mail it to them. I think it would help them.
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